Saturday, February 4, 2017

Tightrope

I know we are doing better than we have in the past. Thanks to my Pebble, I am keeping a much closer eye on J's blood sugar than I ever have been able to before. His last A1c was down from 8.4 to 6.7, which is a great drop! I am very happy with that and I try to remember what Dr. L told me at our last visit - "you are doing a great job. Don't get OCD about his numbers." (that's a summary)

I do try to remember what he said. And I don't think J has hit a blood sugar of 300 since we started using nightscount, which is HUGE!

However, he might just hit that 300 tonight, because he is currently 239 and rising. He was over 200 and just had to have a piece of pie. His impulse control is really improving, it is. But it's so frustrating to me when he can't wait until he has a better level before eating *pie* for goodness sakes! 

I do try to look at how much better he is doing. He actually complained to me that he was going to hit 300 the other night after eating cereal (he didn't, praise God). He never cared what his BG was before this, so it is a huge improvement. 
Cereal is horrible. I am not sure what is going on. For a while it seemed like we had it licked and he was doing well after eating cereal. 
I think we might just need to adjust his insulin to carb ratio (amount of insulin given for each gram of carbs eaten). But it is extremely hard to adjust that when he won't wait long enough after eating for me to determine if the ratio is right! I need him to wait at least 3 hours so the insulin has done all the work it can do in his body, and see if he returns to a good level. If he would just do that, I could adjust his ratio. But no! He eats a piece of pie! <sigh>
And now he is 245 and still rising. Ugh. 

I've got him on that 6 units per hour basal rate to fight this high blood sugar, because getting those little bumps every three minutes seems to work faster than giving him a larger bolus all at once. But I have to stay up until he starts coming back down, because if I left him on that basal rate all night, it would quite literally kill him. 

Type 1 Diabetes is the only disease that makes parents into caretakers, into medical professionals on their child's disease. Into the person on which our child's life depends. Make a mistake and you can kill them. Err on the other side and they can die of DKA or lose parts of their body. It's a tightrope and I would like to get out of this circus! 


No comments: